Pediatric palliative care is intended to promote children’s quality of life by using a family-centred approach. The measurement of this multidimensional outcome remains challenging.
Marie Friedel, Isabelle Aujoulat, Anne-Catherine Dubois and Jean-Marie Degryse just published a systematic review on this topic in the prestigious journal Pediatrics.
They conclude that so far children are not systematically involved in reporting outcomes and that the psychometric properties of the instruments used to assess the impact of PPC interventionsare scarce.
Sculpture by Nathalie Joiris