Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review

Bruxelles Woluwe

Pediatric palliative care is intended to promote children’s quality of life by using a family-centred approach. The measurement of this multidimensional outcome remains challenging.

Marie Friedel, Isabelle Aujoulat, Anne-Catherine Dubois and Jean-Marie Degryse  just published a systematic review on this topic in the prestigious journal Pediatrics.

They conclude that so far children are not systematically involved in reporting outcomes and that the psychometric properties of the instruments used to assess the impact of PPC interventionsare scarce.

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 Sculpture by Nathalie Joiris

Publié le 10 décembre 2018