14:00
27/02/2025 - 14:00 -
will give a presentation on :
"Human genetic research in the age of mass surveillance".
Abstract :
Human genetic research is advancing rapidly, facilitated by the availability of large-scale genomic data sets and the development of high-throughput sequencing technologies. At the same time, the rise of mass surveillance has led to concerns about the potential misuse of genetic data, particularly in relation to privacy and discrimination. This has raised important ethical questions about the collection, storage, and use of genetic data. I will discuss several cases of misuse of forensic DNA profiling and the involvement of different actors including companies, researchers, and scientific journals. I will discuss the risks that such misuses represent for the public trust in human genetics and the need to enforce ethical frameworks and guidelines that ensure the responsible use of genetic data. Researchers are thus faced with the challenge of balancing the benefits of genetic research with the need to protect individual privacy and autonomy. Human genetic research must acknowledge that we live in a time where the fear of mass surveillance is a legitimate concern. While the potential benefits of genomic research are vast, researchers must navigate complex ethical and legal landscapes to ensure that the collection and use of genetic data is carried out in a responsible and ethical manner. They must also preserve the trust society places in healthcare providers.
See also :
Doctorats honoris causa - Programme 27-28 février 2025